£29,675 - £31,574 yearly
Genetic Alliance UK Central London, London, UK
Apr 03, 2019Permanent
Genetic Alliance UK is the national charity working to improve the lives of patients and families affected by all types of genetic, rare and undiagnosed conditions. We are a membership organisation made up of over 200 patient groups and we aim to upskill our members, bring knowledge and advice, and unify their voice around key policy issues that affect the patient community. We are experts in health policy and have a team of in-house academics who conduct psychosocial and economic research into the effects of living with genetic, rare and undiagnosed conditions. We also actively support research and innovation across the field of genetic medicine, and raise awareness within the wider public. We have two long-standing projects: Rare Disease UK is a campaign that was established to push for the creation and implementation of the UK Strategy for Rare Diseases. Rare Disease UK is also the official organiser of the international health awareness campaign, Rare Disease Day, for the UK. SWAN UK (syndromes without a name) is the only dedicated support network in the UK for families that have a child or young adult with an undiagnosed genetic condition. ABOUT THE ROLE: This is a fundamental and central role for Genetic Alliance UK and the post holder will work cross-departmentally on a range of exciting projects. The Membership Engagement Manager will lead and develop all membership activities for our organisation and expand the number of members we support in line with our 2018-2023 strategy. This will include organising year-round online and face to face learning opportunities, our Annual Conference, regularly meeting potential member organisations, speaking at member conferences, and processing renewals. The post holder will also be involved in innovative engagement activities, and take a coordinating role for projects. Additionally, you will play a significant role within the communications team which will include line management responsibilities and leading on member communications across digital channels, using video and blogs, and through print. You will also deliver public engagement aspects of national health campaigns – Rare Disease Day and Undiagnosed Children’s Day. This is an exciting opportunity for an individual to work across events, communications, project management and adhoc public engagement activities, in a fast paced environment within a supportive staff team. KEY RESPONSIBILITIES: MEMBERSHIP ENGAGEMENT AND DEVELOPMENT Proactively engage with members throughout the lifecycle of their membership, cultivating strong relationships with members, understanding their needs and ensuring member views are a central part of strategy development and operational plans. Lead the development & implementation of new initiatives for assessing & increasing membership satisfaction. Actively seeking to expand the membership programme, contacting eligible organisations and presenting ‘member benefits’. Developing and delivering a programme of membership engagement opportunities such as webinars, workshops, and information days, with the aim of ensuring our members have an opportunity to learn about the issues Genetic Alliance UK works on and become more empowered supporting their patient community. Supporting Genetic Alliance UK’s membership communications activity online and via social media. MEMBERSHIP MANAGEMENT Receiving and processing membership applications in accordance with Genetic Alliance UK’s Memorandum & Articles. Maintaining our membership database and lead the annual membership renewal process. Making recommendations to the Board in relation to acceptance of membership applications and conversely removal of existing members. Maintaining Genetic Alliance UK member information, updating profiles online as required and leading the development and delivery of members’ area on the website. Ensuring website internal records are up-to-date with respect to membership information. Acting as the first point of contact for membership queries. MEMBERSHIP EVENTS Leading on the design and implementation of our Annual Conference, and bespoke engagement events, project managing all aspects including venue hire, setting the programme, speakers, catering, accessibility and risk assessment. Compiling event budgets, closely monitoring income and expenditure and presenting financial updates when required. Developing and editing high-quality information resources for use by members, patients and the public, including the optimisation of resources through our website. Implementing and management of our Information Standard commitments. Ensuring we provide effective and dynamic science communication when new innovative scientific techniques, treatments or issues emerge. OTHER RESPONSIBILITIES: Work with fundraising colleagues to secure income for relevant projects and activities. Keep abreast of policy developments through regular contact with the Policy Team. Recruitment and line management responsibility. Co-ordination of specialist projects. PERSON SPECIFICATION: EDUCATION AND QUALIFICATIONS Graduate or equivalent experience. ESSENTIAL QUALITIES, SKILLS AND EXPERIENCE A minimum of two year’s demonstrable experience in an engagement role. Event organising experience, including budgeting, planning, managing bookings, administration, financial management and advertising. Experience of project development, management and measuring impact of activities. Experience of recruitment and line management of paid staff or volunteers. Excellent interpersonal skills. Excellent communication skills, both written and oral. Ability to work both as part of a team and independently. A can-do attitude and strategic thinker that works with enthusiasm and creativity. Excellent record keeping and administration skills. A logical and organised approach to work. Ability to meet agreed deadlines, prioritise workload and maximise the use of time. Interest in healthcare, genetics and rare disease. A commitment to the aims and objectives of Genetic Alliance UK. DESIRABLE A working or educational background in science and/or genetics. An interest in design and web development. Previous experience of creating surveys. ADDITIONAL REQUIREMENTS To be able to work occasional evenings and weekends, and longer hours as required around national awareness campaigns Rare Disease Day and Undiagnosed Children’s Day. Willing to undertake occasional travel in the UK. THE PROCESS: To apply please send a covering letter explaining how you meet the requirements of the role and person specification, along with a CV. Please email these to firstname.lastname@example.org . If you have any questions about the position or working for Genetic Alliance UK, you can contact Emma Damian-Grint, Director of Fundraising and Communications, on 0207 831 0883. Applications close 17:00, Wednesday 1 May 2019. Interviews will be held at our offices on 7 May 2019. If shortlisted you will be asked to do a 10 minute presentation, followed by a 45 minute interview. To start as soon as possible.