Before SOFT UK was set-up in 1991, most families didn't know where to turn when they received a diagnosis of Trisomy 13 or Trisomy 18. Their experience of Trisomy was hugely isolating and they felt completely alone. Our primary mission at SOFT UK is to ensure families can now access support when they need it. 

SOFT UK Support Volunteers are parents with experience of receiving a diagnosis of Trisomy 13, 18 or a related condition.  They are specially trained to provide information and support to new members. 

We also run our SOFT FAMILIES Facebook group enabling SOFT UK members to connect with each other online. 

We are passionate about helping those who most need our help and support.